PAM...again

We are in Columbus getting Ethan's PAM treatment. We are thankful that we are even here. On Friday I received a call from the 'bone nurses' that the hospital census has been high and elective admissions were being bumped. Luckily on Monday morning the census was down and we were able to get Ethan admitted. Yay!

We have completed Day 2 of 3 of the infusion and Ethan is a little wild man....as usual. :) So far his IV is still good. It is wrapped up nicely though and then covered in a sock to keep him from chewing on it.

Each treatment gets more fun as Ethan becomes more mobile. He loves to roll and keeping him from doing that when he is hooked up has been fun. I have threatened to ace wrap his arm to his body to keep him from picking at the IV...this is why the sock is over it now.

We have tried many things to distract him. Such as......

Mamaw bought a monkey with eyes as big as Ethan's as well as a spongebob toy


Mommy bought him balloons. He likes the Elmo the best.


And of course we have been playing with him non stop. He giggles and laughs without much effort on our part.



He also gave me a kiss yesterday. He has been making a face that we call his fishy face. He was doing this and making kissy sounds so I put my cheek next to him and he gave me a kiss. Mommy was so happy!

He got up on his knees last night and today. He has done this a few times but for very short periods of time. He slept this way for a long time last night.....on his tummy with his butt up in the air because he tucked his knees under his body. Maybe this is a first step towards crawling!

Go Ethan!

First Hair Cut

I finally broke down and had Ethan's hair cut for the first time. It was getting WAY too long on the top. I took him to Holli who also does my hair. She did a great job and she didn't even charge us. Thanks Holli!

Before my hair cut - this shows WHY I needed a cut


I loved the cape - made me feel like a super hero. :)


I sat very still for Holli and enjoyed my hair cut


The final product - my new "do"

7 Months Old

My big boy is 7 months old today. :) He is now 13lb10oz and 25.75in. He didn't gain length this month and his weight gain has slowed as well. He is due for treatment in a little over a week so maybe things will pick back up once he gets it. Otherwise he is doing just fine. He has been rolling all over the floor and gets mad once he rolls up against something that he can't move....like the couch. LOL.

Hanging out in my chair


It's my 7 month birthday!


Smiling for Mommy


Mommy likes to put hats on me. :)

Swim Vest

Thanks to advice from another OI Mom I bought Ethan a swim vest. We put him in the big tub tonight and gave it a try. I think he likes it. I can't wait to see how he does in the pool. Our little fishy loves the water.

Ethan in swim vest

Happy Halloween!

We celebrated Ethan's first Halloween yesterday. We dressed him up and then sat out on the cul-de-sac and gave away candy. No trick-or-treating this year but I don't think he cared. It was cold so we were only out for an hour. It was long enough to see all of the cute and scary costumes of our neighbors.

Ethan and Mommy passing out candy


Posing for pics in our costumes. I was dressed up as a Mom ;)



Showing off his tail



Family Pic


Ethan in his costume

Visiting Grandma and Grandpa

We are in Poughkeepsie, NY right now visiting Grandma and Grandpa Desai as well as the rest of the Desai family. We flew in on Friday evening and Ethan did well on his first flight. He smiled and played peek-a-boo with the passengers around us most of the time and was very well behaved.

Of course he waited until the seatbelt signs came back on and we were on final descent before he pooped. It was not a huge deal, we could handle a dirty diaper once we deplaned. Then he vomited all over himself and me. I had to strip him and wipe him off the best I could. He was sticky and I couldn't really get to his clean clothing anyway so he left the plane naked, wrapped in a blanket, with a stinky diaper. We headed straight for the bathroom and cleaned him up. He was unfazed by all of this of course.

On Saturday everyone came over to meet Ethan. We had a great time and Ethan was all smiles and loved meeting everyone.

Ethan meeting Shashi Uncle


Ethan winking. I love this picture. I have no idea who he was winking at but he seemed to LOVE staring at Michele so maybe it was her. :)



Ethan and Giada. Giada is 2 months younger than Ethan.


Ethan wearing Uncle Jay's gift - a NY Mets onesie.

Ethan and Auntie Manisha

Ethan with Bukulimasi and Grandma

The sign Grandma made for Ethan

Grandma feeding Ethan

Grandpa and Ethan. Ethan LOVES Grandpa

...and Grandpa LOVES Ethan

Montreal

We heard from Montreal today. Ethan's first appt is on Jan 5th. It is going to be freezing there but oh well. Ethan will have to be fasting :( and the appts start at 8am. He will be 9 months old by then so hopefully he won't be waking to eat or we will have a VERY long night! I don't have all of the details yet so I'm not sure how many days we will have to stay but we are happy to stay as long as necessary. We just want the best for Ethan and right now that is in Montreal.